The mindset part 3:

The mindset of the people affected by the disorder and the people around the affected person:(Personal views of the Author)

One person in a family affected by the Hutchinson- Gilford syndrome by itself, is very saddening and painful, but there are cases where more than one member in a family gets affected. In this case, the family members have to take good care of not one, but two to three of their children affected by the syndrome.

In this case, the pain and grief is twice and thrice than normal and they definitely need the support of the people around them, in the form of relatives, friends and neighbors.

Progeria, being a less known disorder, not many understand the problems associated with it and the sufferings undergone by the family members. These people who are not fully understanding of the state of the affected person and their family, tend to mock their appearance, the way they speak, move about and everything associated with them.

Their mockery and insults only add to the sufferings of the patients and their family, and such acts must be seriously condemned. But you can't blame these individuals as it is the lack of understanding of the disorder that makes them seem like an insensitive lot. News of Progeria must be spread all over the world and more money should be spent on their research.

Movies like Paa (See Progeria in Media for more details) have significantly made it popular, but more has to be done. Sites putting up pictures of Progeria patients and calling them names of characters from fantasy movies or extra terrestrials must be stopped right away. These patients have hearts and they do suffer a whole lot.

If a member of our family suffer, would we be as insensitive or would we help them. It is every man's responsibility to come forward and help these poor souls and their families. Help spread the word...

As for the few doctors and researchers who spend a whole lot of their time in helping cure these patients, special credits and praises must be given to them for their service. A Few celebrities and volunteers have come forward to collect funds, help the patients and also spread the news of the disorder all over the world and these people also deserve some recognition. More people should take notice of the disease and more should be done to help them.

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