Progeria being a rare disorder, has fewer number of people affected by it. Though it might seem like a good thing, that not many are affected, it is indirectly a very bad thing for the people affected by it. Doctors and Researchers tend to do more work on diseases and disorders which affect people in larger numbers, not just because it means that they would get more money (a false thought that common man thinks regarding people in the medical industry), but also because that a lot of people need assistance right away, reducing a lot of deaths.
As the disorder is a rare one, the research done and medicines created for its treatment are relatively less, though of great value. Unlike the number of researches done for a Cancer or even a common cold, progeria does not have a quarter the work done on it, though there are a significant few who carry out work in finding the cure for the disease all over the world. These scientists and doctors must be greatly appreciated for their work.
That said, the lack of sufficient support, means lesser hope for the people affected by the disorder, causing more mental agony for the family members of the affected. The affected person himself or herself goes through a lot of pain and discomfort. As humans, when we are affected by mere cold, we long for those seven days (the usual time, perceived to be taken for the cold to let go of the patient) to end, so that we can live a painless, healthy life.
But the people affected by Progeria go through so much pain and so many variety of problems in their body, that they live their entire life, hoping for it to end, but not end in death.
Sadly death is currently the only way out and the families of the affected people, have to spend each day of their life, praying to God, to extend the period of their beloved child's life, but reduce his or her pain too. When humans cannot find a solution through science, they have to resort to God, and that is what happens in families which have people affected by fatal diseases and disorders. (Contd.)